28 Feb 14 – Surgical plan

We have certainly learned a lot since we started looking into limb salvage surgery for Esme. More than we really wanted to know. We contacted and consulted with surgeons from Gainesville, FL, Boston, MA, Salt Lake City, UT, Atlanta, GA, New York City, NY,...

Update – 23 Feb 14

Esme is wrapping up another chemo admission like a champ! We will go home tonight as long as her methotrexate level is low enough. We got here Wednesday, spent the morning in an orthopedic office discussing “pancakes” (our family code word for surgery...

Update – 14 Feb 14

Today was Esme’s appointment with Dr. Scarborough, the orthopedic oncologist in Gainesville. We got lots of information about what is involved in Esme’s surgery, but hearing it made us want to throw up (Esme and Maslin were coloring in the room next to...

Update – 13 Feb 14

Esme’s counts are headed in the right direction, so she is getting discharged. Her platelets were really low last night so she got a unit of platelets. Leaving from here to head to Gainesville, FL for a surgical consult tomorrow. The results from Esme’s CT...

Update – 11 Feb 14

Well, Esme has had quite a busy day today. Antibiotics, labs, chest CT, MRI. She’s done well with all her tests, including the MRI. To see what an MRI is like for yourself, do this: get a coffee table, place it on a hard surfaced floor. Lay down a thin blanket...

Update – 9 Feb 14

Esme had a relatively good night, no throwing up at least. The IV phenergan allowed her to sleep for most of the night. Today wasn’t as good. No appetite, no food in her tummy, but nauseated. Even with antiemetics on board, she still threw up several times. And...

Update – 8 Feb 14

We are behind on updates, and we have some really good ones to post! Unfortunately, before we can get those ones posted we must post this one. Fever. White count of 0.8. ER. Antibiotics. Admission. No Chick-fil-A father-daughter date night tonight. More to come after...

3 Feb 14 – Update

We made it home Sunday evening, we were all glad to be home. Jemma (the chihuahua) was so glad to see Esme and slept with her all night long. We had to have Esme back at Aflac this morning for her Neulasta shot. The Neulasta helps stimulate new white cell growth, so...

28 Jan 14 – Update

Well, everyone was disappointed that Esme didn’t clear last night and she and Jackie had to stay another day. They said they would draw her labs again this morning and try again. We were sure she would clear this time, but we made a contingency plan just in...

25 Jan 14 – Update

We have to celebrate and share our two lovely days at home with you!  First, we got to take part in the amazing show of selflessness and support for Esme at Westwood Elementary on Wednesday with “Boys Buzzing for Esme.”  It was fun and silly and deeply...

21 Jan 14 – Update

Esme had a relatively good day yesterday, little nausea and no vomiting. Yay! Her MTX level came back at 0.15, a level of 0.10 would have sent us home. Fluids will remain running at the same rate and we’ll check again today. I believe the magic number for today...